Wednesday, June 11, 2014

Paul Naaman Boros

Hi Friends!

It's been nearly a year since we posted anything on the blog and we wanted to give you a little update in case anyone is wondering how Greg has been since we moved to State College.

Greg's health has been really good this year!  We've driven back to Fairfax a few times throughout the year for his biopsies and annual testing and his heart it doing really well.  He hasn't had any rejection and as of his last biopsy in March, he only needs to have biopsies every 6 months since he's been doing so well.  God has been so good to us!

But the best thing that happened this year is the birth of our baby boy, Paul Naaman.  He was born April 5th and is growing and changing so much every day.  We absolutely adore him and he is one of the best gifts that the Lord has ever given us.

Because of Greg's heart transplant and the possibility that Paul could inherit ARVD from Greg, we already have taken him to see a pediatric cardiologist.  His heart is absolutely perfect but they will be tracking him every 6 months to watch for any changes that might be of concern (ARVD typically doesn't present itself until someone is in their teens, 20s, or even later).  We are not dwelling on the possibility of Paul inheriting ARVD but are trying to trust God with whatever he has planned for Paul's future.  And right now, we are just soaking up our little boy's precious smiles and snuggles!

We thought you might enjoy seeing a couple pictures of Paul!
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4 comments:

  1. lOctober 3, 2014 at 8:20 PM

    I want to follow your journey, my son just developed AMR so we are just beginning this new journey, He is 11 months post transplant. So far 1 round of treatment 3 days back in hospital for the high dose steroids and 6 bottles of ivig. Had a biopsy today and should get results back Mon or Tue. Please let me know if you can share any helpful info.

    ReplyDelete
    Replies
    1. EliseJuly 31, 2015 at 11:30 AM

      I'm sorry for the late reply - we don't check this website often anymore. Please give me your email address and I'll write you personally.

      Delete
  2. lAugust 5, 2015 at 6:10 AM

    Thanks for taking the time to write me Jake is still battling a.m. or this is one year now of high levels of donor specific antibodies. He has been through all the treatments and they have not done anything because of the side effects. Heart functioning still declining and they are concerned about the anybodies rising even higher so come Tuesday they do want to do the home infusions of IVIG in hopes of keeping the levels at bay. Jake is very tired all the time he is only 18 years old will be 19 next month. This is a lot to come for hand and watching my son get sick is very hard.Sneaklp@ gmail.com

    ReplyDelete
  3. lAugust 5, 2015 at 6:10 AM

    Thanks for taking the time to write me Jake is still battling a.m. or this is one year now of high levels of donor specific antibodies. He has been through all the treatments and they have not done anything because of the side effects. Heart functioning still declining and they are concerned about the anybodies rising even higher so come Tuesday they do want to do the home infusions of IVIG in hopes of keeping the levels at bay. Jake is very tired all the time he is only 18 years old will be 19 next month. This is a lot to come for hand and watching my son get sick is very hard.Sneaklp@ gmail.com

    ReplyDelete

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