Greg's cellular rejection is gone! We received the results late this afternoon and are so glad that his heart is safer! They are still waiting to get the results of yesterdays blood test for AMR to determine the next steps for treating it. But for today we're just thankful that the cellular rejection is gone!
Elise
Tuesday, July 31, 2012
Monday, July 30, 2012
More AMR
Hi Everyone,
Greg had his biopsy this morning. We won't know the results until tomorrow, but the good news is that his heart is functioning really well. We're hopeful that this means the cellular rejection is over, but we'll have to wait and see (last time his heart function looked good but he did have cellular rejection).
We did get the results of Tuesdays blood work - Greg still has AMR and the level of the rejection is unchanged since 7/11. He will definitely need to be treated for it, but they have to wait to see about the cellular rejection before moving ahead. There are a variety of options they can choose from for treating him for the AMR so we don't know what to expect at this point. Hopefully we'll know more tomorrow.
We've been anticipating that the AMR would still be there so it's not really a big disappointment or surprise. But we would appreciate your prayers that the doctors would find a treatment that would work well without a lot of negative side effects.
Thanks so much,
Elise
Greg had his biopsy this morning. We won't know the results until tomorrow, but the good news is that his heart is functioning really well. We're hopeful that this means the cellular rejection is over, but we'll have to wait and see (last time his heart function looked good but he did have cellular rejection).
We did get the results of Tuesdays blood work - Greg still has AMR and the level of the rejection is unchanged since 7/11. He will definitely need to be treated for it, but they have to wait to see about the cellular rejection before moving ahead. There are a variety of options they can choose from for treating him for the AMR so we don't know what to expect at this point. Hopefully we'll know more tomorrow.
We've been anticipating that the AMR would still be there so it's not really a big disappointment or surprise. But we would appreciate your prayers that the doctors would find a treatment that would work well without a lot of negative side effects.
Thanks so much,
Elise
Sunday, July 29, 2012
GOOD NEWS!!
We are SO excited to tell you that we just found out that United REFUNDED THE COST OF OUR CANCELED FLIGHTS!!!!! We only lost $130 total in fees through the refund process which is unheard of! It is such a huge relief to have this money back that we spent so long saving for. Hopefully some day we'll actually be able to use it to go to Hawaii, but at least now we have it back in our hands and can use it for whatever God brings into our lives. We just called our parents to share the good news and couldn't wait to put an update on this blog. Thank you to everyone for going to bat with us on this! What a RELIEF!!
We had a really wonderful couple of days away on the Chesapeake Bay this week thanks to friends and family. It was so great to get out of town and forget (we made a pact not to talk about any "real life" stuff) medical stuff, and biopsies, and medical expenses, and the refund we were waiting on (and now have!)... and to not check email or our phones.. It's amazing how much a couple days away can do for your perspective and mindset! We both feel so much more able to face whatever is coming at us next.
Greg had a biopsy on Monday to check for his cellular rejection and they will also take more blood to send to Hopkins to check for AMR. We still don't have any results from his blood test this past Tuesday, but they're probably waiting to tell us when they see us on Monday. As always, I'll let you know what's going on once we have some results!
Thank you again for being a part of this awesome, awesome blessing of our refund!
Love,
Elise
We had a really wonderful couple of days away on the Chesapeake Bay this week thanks to friends and family. It was so great to get out of town and forget (we made a pact not to talk about any "real life" stuff) medical stuff, and biopsies, and medical expenses, and the refund we were waiting on (and now have!)... and to not check email or our phones.. It's amazing how much a couple days away can do for your perspective and mindset! We both feel so much more able to face whatever is coming at us next.
Greg had a biopsy on Monday to check for his cellular rejection and they will also take more blood to send to Hopkins to check for AMR. We still don't have any results from his blood test this past Tuesday, but they're probably waiting to tell us when they see us on Monday. As always, I'll let you know what's going on once we have some results!
Thank you again for being a part of this awesome, awesome blessing of our refund!
Love,
Elise
Saturday, July 28, 2012
GOOD NEWS!!
We are SO excited to tell you that we just found out that United REFUNDED THE COST OF OUR CANCELED FLIGHTS!!!!! We only lost $130 total in fees through the refund process which is unheard of! It is such a huge relief to have this money back that we spent so long saving for. Hopefully some day we'll actually be able to use it to go to Hawaii, but at least now we have it back in our hands and can use it for whatever God brings into our lives. We just called our parents to share the good news and couldn't wait to put an update on this blog. Thank you to everyone for going to bat with us on this! What a RELIEF!!
We had a really wonderful couple of days away on the Chesapeake Bay this week thanks to friends and family. It was so great to get out of town and forget (we made a pact not to talk about any "real life" stuff) medical stuff, and biopsies, and medical expenses, and the refund we were waiting on (and now have!)... and to not check email or our phones.. It's amazing how much a couple days away can do for your perspective and mindset! We both feel so much more able to face whatever is coming at us next.
Greg had a biopsy on Monday to check for his cellular rejection and they will also take more blood to send to Hopkins to check for AMR. We still don't have any results from his blood test this past Tuesday, but they're probably waiting to tell us when they see us on Monday. As always, I'll let you know what's going on once we have some results!
Thank you again for being a part of this awesome, awesome blessing of our refund!
Love,
Elise
We had a really wonderful couple of days away on the Chesapeake Bay this week thanks to friends and family. It was so great to get out of town and forget (we made a pact not to talk about any "real life" stuff) medical stuff, and biopsies, and medical expenses, and the refund we were waiting on (and now have!)... and to not check email or our phones.. It's amazing how much a couple days away can do for your perspective and mindset! We both feel so much more able to face whatever is coming at us next.
Greg had a biopsy on Monday to check for his cellular rejection and they will also take more blood to send to Hopkins to check for AMR. We still don't have any results from his blood test this past Tuesday, but they're probably waiting to tell us when they see us on Monday. As always, I'll let you know what's going on once we have some results!
Thank you again for being a part of this awesome, awesome blessing of our refund!
Love,
Elise
Monday, July 23, 2012
Thanks and an update
Hey everyone,
First of all, thank you SO much to everyone who has signed the petition my mom started at Change.org. It has been AMAZING to see so many people sign it and leave comments. Wow is this the most encouraging thing that has happened in a long time for us! We are blown away by so many of you caring for us and fighting for us to get that refund. Right now, all the paper work has been faxed to United and we're waiting on their response. Honestly, if not for the petition we probably wouldn't have a chance of getting a refund since the definition of terminal is 6 months or less to live - with no chance of treatment. Praise God that is not our situation! But that's the requirement for them to consider a refund request. You are adding so much weight to our case by signing the petition and we are so grateful. And even if we don't get the refund, we will not forget this outpouring of love for us.
Greg had an appointment at the hospital today - just to get his meds checked on and other details like that. We didn't realize they were going to do this, but they took blood today to send to Hopkins to test for AMR (antibody mediated rejection). We should have the results by the end of the week. But since his biopsy is on Monday (checking for the cellular rejection and again taking a blood sample to send to Hopkins), they won't treat him unless the AMR is significantly worse until after they get the results of the biopsy and second blood test.
Overall, he's feeling pretty crummy, but a lot better than he was feeling when he got out of the hospital last week. He seems to be adjusting to being on the prednisone again, and though he still aches in his joints he isn't as shaky and weak. His stomach has been pretty upset the whole week, but they tweaked some of his meds a bit to hopefully make things easier on his stomach.
Emotionally, this has been a tough week for both of us. I actually drove to church Saturday night and then turned around in the parking lot because I was so overwhelmed by the thought of seeing people. Our church is so loving and cares so much about Greg - but showing up without him and just verbalizing what things have been like was too much - I just couldn't do it. Maybe that sounds melodramatic, but right now we're processing a lot of emotions that are hard to talk about. We've been in similar places before and I'm just trusting that the Lord is going to walk us through this as he's done in the past - one step and one day at a time.
Thanks to some family and dear friends, Greg and I have been given the opportunity to go away for a couple nights. We're allowed to be a couple hours away from the hospital (we made sure to have permission) and we're really looking forward to getting away from Fairfax for a few days before the next biopsy. We leave tomorrow and we can't wait!
Thanks again for showing us so much support and love once again. You are a blessing from God.
Love,
Elise
First of all, thank you SO much to everyone who has signed the petition my mom started at Change.org. It has been AMAZING to see so many people sign it and leave comments. Wow is this the most encouraging thing that has happened in a long time for us! We are blown away by so many of you caring for us and fighting for us to get that refund. Right now, all the paper work has been faxed to United and we're waiting on their response. Honestly, if not for the petition we probably wouldn't have a chance of getting a refund since the definition of terminal is 6 months or less to live - with no chance of treatment. Praise God that is not our situation! But that's the requirement for them to consider a refund request. You are adding so much weight to our case by signing the petition and we are so grateful. And even if we don't get the refund, we will not forget this outpouring of love for us.
Greg had an appointment at the hospital today - just to get his meds checked on and other details like that. We didn't realize they were going to do this, but they took blood today to send to Hopkins to test for AMR (antibody mediated rejection). We should have the results by the end of the week. But since his biopsy is on Monday (checking for the cellular rejection and again taking a blood sample to send to Hopkins), they won't treat him unless the AMR is significantly worse until after they get the results of the biopsy and second blood test.
Overall, he's feeling pretty crummy, but a lot better than he was feeling when he got out of the hospital last week. He seems to be adjusting to being on the prednisone again, and though he still aches in his joints he isn't as shaky and weak. His stomach has been pretty upset the whole week, but they tweaked some of his meds a bit to hopefully make things easier on his stomach.
Emotionally, this has been a tough week for both of us. I actually drove to church Saturday night and then turned around in the parking lot because I was so overwhelmed by the thought of seeing people. Our church is so loving and cares so much about Greg - but showing up without him and just verbalizing what things have been like was too much - I just couldn't do it. Maybe that sounds melodramatic, but right now we're processing a lot of emotions that are hard to talk about. We've been in similar places before and I'm just trusting that the Lord is going to walk us through this as he's done in the past - one step and one day at a time.
Thanks to some family and dear friends, Greg and I have been given the opportunity to go away for a couple nights. We're allowed to be a couple hours away from the hospital (we made sure to have permission) and we're really looking forward to getting away from Fairfax for a few days before the next biopsy. We leave tomorrow and we can't wait!
Thanks again for showing us so much support and love once again. You are a blessing from God.
Love,
Elise
Monday, July 16, 2012
we're home
Hey Everyone,
Thanks for keeping up with what's been going on this week and praying for us and encouraging us along the way. We are so sick of all of this stuff - ugh.
We got home from the hospital around 4pm today. Greg's feeling really wiped out physically and we're both emotionally exhausted. A lot was thrown at us over the past few days and we're just trying to deal with everything without succumbing to despair.
They doctors have increased both of Greg's immunosuppressent transplant meds and they've also put him back on prednisone. And since he's on prednisone, he's also on a couple other things to prevent him from an infection common with prednisoe and to protect his stomach from ulcers from all of these meds.
Next Monday we have an appointment with the transplant clinic to discuss Greg's situation and for blood work to make sure his medication levels are okay. At that appointment they will schedule his next biopsy.
We finally got to see one of the coordinators (Carolyn - our favorite from before his transplant) and she gave us a lot more information about what's been going on - what possible causes are, etc. - than we got from the doctor who pretty much wouldn't commit to giving us any specific details about what to expect moving forward. We still don't really understand the different types of rejections and how they are treating them.
What we do know is:
Some sort of infection must have caused the antibody mediated rejection. They've tested him for and ruled out any major infections and it could have been something as simple as a cold (he's had a sore throat a couple times but really hasn't had any major cold at all this year but apparently it could be something very minor that could cause this)
The treatments in June did have a positive affect on the AMR, but it wasn't enough. He may have had a minor amount of cellular rejection beginning around that same time that wasn't detected in the biopsy - and even though he was receiving some steroids in June the dose was too low to stop the rejection from getting worse.
This hospital stay and the mega-doses of steroids he received were primarily targeting the cellular rejection. The hope is that between the steroids, the increase in his anti-rejection drugs, and going on prednisone again, the AMR will also be affected (and prayerfully stopped).
Greg had been at a pretty low level of immunosuppressents so there is a lot of room to increase his doses before running out of treatment options.
Greg is going to be seriously immunosuppressed for awhile - no crowds and he'll be wearing a mask a lot again.
The treatments he had in June were major treatments and if he needs more treatments for the AMR after his next biopsy, they will have to pull out "bigger guns". There seem to be a few options for treating him - but none of this is set-in-stone. Again, it's a new area of medical understanding so there's no clear path in this scenario.
Now, if you can make sense of all of that.. give me a call and explain it to me! We are in so far over our heads and while we want so much to understand every detail it's just not a possibility, which is very frustrating (for me at least).
How are we doing personally? Not well. But neither of us feel like we can "go there" emotionally right now. We're just trying to keep moving forward - and bit by bit working through how this is impacting us inside.
We are so grateful for your prayers.
Elise
Thanks for keeping up with what's been going on this week and praying for us and encouraging us along the way. We are so sick of all of this stuff - ugh.
We got home from the hospital around 4pm today. Greg's feeling really wiped out physically and we're both emotionally exhausted. A lot was thrown at us over the past few days and we're just trying to deal with everything without succumbing to despair.
They doctors have increased both of Greg's immunosuppressent transplant meds and they've also put him back on prednisone. And since he's on prednisone, he's also on a couple other things to prevent him from an infection common with prednisoe and to protect his stomach from ulcers from all of these meds.
Next Monday we have an appointment with the transplant clinic to discuss Greg's situation and for blood work to make sure his medication levels are okay. At that appointment they will schedule his next biopsy.
We finally got to see one of the coordinators (Carolyn - our favorite from before his transplant) and she gave us a lot more information about what's been going on - what possible causes are, etc. - than we got from the doctor who pretty much wouldn't commit to giving us any specific details about what to expect moving forward. We still don't really understand the different types of rejections and how they are treating them.
What we do know is:
Some sort of infection must have caused the antibody mediated rejection. They've tested him for and ruled out any major infections and it could have been something as simple as a cold (he's had a sore throat a couple times but really hasn't had any major cold at all this year but apparently it could be something very minor that could cause this)
The treatments in June did have a positive affect on the AMR, but it wasn't enough. He may have had a minor amount of cellular rejection beginning around that same time that wasn't detected in the biopsy - and even though he was receiving some steroids in June the dose was too low to stop the rejection from getting worse.
This hospital stay and the mega-doses of steroids he received were primarily targeting the cellular rejection. The hope is that between the steroids, the increase in his anti-rejection drugs, and going on prednisone again, the AMR will also be affected (and prayerfully stopped).
Greg had been at a pretty low level of immunosuppressents so there is a lot of room to increase his doses before running out of treatment options.
Greg is going to be seriously immunosuppressed for awhile - no crowds and he'll be wearing a mask a lot again.
The treatments he had in June were major treatments and if he needs more treatments for the AMR after his next biopsy, they will have to pull out "bigger guns". There seem to be a few options for treating him - but none of this is set-in-stone. Again, it's a new area of medical understanding so there's no clear path in this scenario.
Now, if you can make sense of all of that.. give me a call and explain it to me! We are in so far over our heads and while we want so much to understand every detail it's just not a possibility, which is very frustrating (for me at least).
How are we doing personally? Not well. But neither of us feel like we can "go there" emotionally right now. We're just trying to keep moving forward - and bit by bit working through how this is impacting us inside.
We are so grateful for your prayers.
Elise
Sunday, July 15, 2012
Would you please pray for me?
Hey loved ones,
I don't have anything insightful to share right now, just a really serious need for prayer. Two days ago it was finding out that I'm rejecting at both the cellular and antibody levels. Earlier today, my doctor did give us a hard and fast "no" on our Hawaii trip. Just a little bit ago I found out that if this next biopsy doesn't go perfectly, I'm slated for a big hospital stay followed by more chemotherapy. The truth is that I try to be so strong, and really I'm just filled with despair. Lise too.
The Hawaii thing might seem like an ostentatious luxury, and maybe not a big deal that we're missing it - but we've been saving every month for 5 years to do this, and now it looks like the airline is going to keep our money. Actually, while the money is a huge blow, the real hurt comes from the fact that this trip had become our only enduring dream over the last several years. Lots of other dreams have had to be put on hold or let go of for good, but this trip was supposed to be the celebration of my surviving the transplant, combined with celebrating our 5th wedding anniversary (June 24th). It was also the last plan for our summer that hadn't been canceled. Overwhelming disappointment has become far to common an emotion for us.
I feel so sad, and angry, and impotent, and dead inside, so much of the time. I desperately need your prayers, and Elise does too. There seems to be little use in praying for a change of events, or a dramatic turn of health, or other versions of the "things will come out right" prayer - I don't know why, but Jesus has laid a rough path, and it seems the plan is for us to walk it. I think we need prayers for feeling his presence during the journey. Some may argue that there's no way Jesus can "abide" with us and not bring joy, but my experience tells me otherwise. And honestly, I don't think I can reach for joy right now - I just need him to remind me of his presence and provision, and the fact that He has not forgotten us. These are things I know in my head, and I know the verses that teach them. But in my experience, knowledge very seldom comforts, and never rescues.
Even as I write this, I'm aware that many of you who might read it are going through struggles equally or more challenging that what lies before Elise and me right now. I'm very sorry if I've made you feel disrespected or unregarded in your own suffering by writing frankly here. One thing I have learned is that a person's suffering is all their own, and one of the most unique aspects of their relationship with God - after all, no one really does or can completely understand what you're feeling except Him. That's why we need to pray for each other. Even as I ask for prayers, I want to offer to pray for you too. Please write me back if I can - we all walk through darkness at some point or another.
I love you all,
Greg
I don't have anything insightful to share right now, just a really serious need for prayer. Two days ago it was finding out that I'm rejecting at both the cellular and antibody levels. Earlier today, my doctor did give us a hard and fast "no" on our Hawaii trip. Just a little bit ago I found out that if this next biopsy doesn't go perfectly, I'm slated for a big hospital stay followed by more chemotherapy. The truth is that I try to be so strong, and really I'm just filled with despair. Lise too.
The Hawaii thing might seem like an ostentatious luxury, and maybe not a big deal that we're missing it - but we've been saving every month for 5 years to do this, and now it looks like the airline is going to keep our money. Actually, while the money is a huge blow, the real hurt comes from the fact that this trip had become our only enduring dream over the last several years. Lots of other dreams have had to be put on hold or let go of for good, but this trip was supposed to be the celebration of my surviving the transplant, combined with celebrating our 5th wedding anniversary (June 24th). It was also the last plan for our summer that hadn't been canceled. Overwhelming disappointment has become far to common an emotion for us.
I feel so sad, and angry, and impotent, and dead inside, so much of the time. I desperately need your prayers, and Elise does too. There seems to be little use in praying for a change of events, or a dramatic turn of health, or other versions of the "things will come out right" prayer - I don't know why, but Jesus has laid a rough path, and it seems the plan is for us to walk it. I think we need prayers for feeling his presence during the journey. Some may argue that there's no way Jesus can "abide" with us and not bring joy, but my experience tells me otherwise. And honestly, I don't think I can reach for joy right now - I just need him to remind me of his presence and provision, and the fact that He has not forgotten us. These are things I know in my head, and I know the verses that teach them. But in my experience, knowledge very seldom comforts, and never rescues.
Even as I write this, I'm aware that many of you who might read it are going through struggles equally or more challenging that what lies before Elise and me right now. I'm very sorry if I've made you feel disrespected or unregarded in your own suffering by writing frankly here. One thing I have learned is that a person's suffering is all their own, and one of the most unique aspects of their relationship with God - after all, no one really does or can completely understand what you're feeling except Him. That's why we need to pray for each other. Even as I ask for prayers, I want to offer to pray for you too. Please write me back if I can - we all walk through darkness at some point or another.
I love you all,
Greg
Saturday, July 14, 2012
Update
Hey everyone,
I just got back from the hospital (it's midnight) and I'm so exhausted - mentally and emotionally. I don't really have it in me to write an update right now, so I'm just going to copy part of an update Greg's mom sent out today to some friends and family today. Thanks for praying for us.
Here's the update:
Smitty and I arrived at the hospital last night around 12A and surprised Greg with a visit until 2A. We were amazed at how he was handling the devastating news of the day, MANY unsuccessful attempts to start an IV before someone from the ER finally got one in, late medications, beeping equipment with not enough staff around to quiet it, and finally receiving 1000mg of IV prednisone. That won't mean alot to those of you who aren't in the health care profession, but it's a HUGE dose. He will receive that same dose again tonight and tomorrow night. He didn't fall asleep until close to 7AM and then was bothered consistently through the morning for vitals/ medications/ cleaning people/ meals, etc. Despite it all, he has remained polite, grateful and gracious with the staff.... truly amazing. Elise remains his sweet and blessed anchor amidst this crazy chain of events.
Dr. May (one of the transplant doctors) saw him this morning and explained that he will receive these high dose steroids for three days and the hope is that it will not only stop the acute rejection, but also somehow stop the antibody mediated rejection. I truly don't understand all this and we will hopefully gain more information tomorrow. The heart biopsy will not be repeated for two weeks after the last steroid dose. If either type of rejection persists, more treatment will be ordered. The doctor said that he will likely remain on maintenance steroids since he has had repeated episodes of rejection. They are also increasing his regular anti-rejection meds.
Greg asked if it was realistic to think that they might still be able to leave for Hawaii a week from tomorrow and Dr. May said that traveling that far in his present condition, plus being in a plane with recirculated air for that long with his immune system again ravaged would probably not be a good idea. Greg and Elise discussed it and cancelled their trip this afternoon. Aside from losing almost $3000 (since UNITED would not sell him trip insurance due to his "pre-existing condition"), this is a huge loss since it was the last "summer dream" they had for this year. .... and everything else had fallen away as well. One truly sweet blessing is that the owner of the resort they were going to stay at is a Christian and when she heard their story this afternoon, has agreed to refund the $800 down payment they had made for their stay.
I just got back from the hospital (it's midnight) and I'm so exhausted - mentally and emotionally. I don't really have it in me to write an update right now, so I'm just going to copy part of an update Greg's mom sent out today to some friends and family today. Thanks for praying for us.
Here's the update:
Smitty and I arrived at the hospital last night around 12A and surprised Greg with a visit until 2A. We were amazed at how he was handling the devastating news of the day, MANY unsuccessful attempts to start an IV before someone from the ER finally got one in, late medications, beeping equipment with not enough staff around to quiet it, and finally receiving 1000mg of IV prednisone. That won't mean alot to those of you who aren't in the health care profession, but it's a HUGE dose. He will receive that same dose again tonight and tomorrow night. He didn't fall asleep until close to 7AM and then was bothered consistently through the morning for vitals/ medications/ cleaning people/ meals, etc. Despite it all, he has remained polite, grateful and gracious with the staff.... truly amazing. Elise remains his sweet and blessed anchor amidst this crazy chain of events.
Dr. May (one of the transplant doctors) saw him this morning and explained that he will receive these high dose steroids for three days and the hope is that it will not only stop the acute rejection, but also somehow stop the antibody mediated rejection. I truly don't understand all this and we will hopefully gain more information tomorrow. The heart biopsy will not be repeated for two weeks after the last steroid dose. If either type of rejection persists, more treatment will be ordered. The doctor said that he will likely remain on maintenance steroids since he has had repeated episodes of rejection. They are also increasing his regular anti-rejection meds.
Greg asked if it was realistic to think that they might still be able to leave for Hawaii a week from tomorrow and Dr. May said that traveling that far in his present condition, plus being in a plane with recirculated air for that long with his immune system again ravaged would probably not be a good idea. Greg and Elise discussed it and cancelled their trip this afternoon. Aside from losing almost $3000 (since UNITED would not sell him trip insurance due to his "pre-existing condition"), this is a huge loss since it was the last "summer dream" they had for this year. .... and everything else had fallen away as well. One truly sweet blessing is that the owner of the resort they were going to stay at is a Christian and when she heard their story this afternoon, has agreed to refund the $800 down payment they had made for their stay.
Friday, July 13, 2012
Bad News
We're about to go to the hospital so this is going to be brief - we just found out that Greg is having both types of rejection right now. He had a biopsy and blood test and his antibody mediated rejection is still present (though a bit less than last time) and he is a 2R with the other type of rejection.
He'll be in the hospital getting IV steroids for 3 days. Then they'll do a biopsy to see if that has helped either type of rejection. If the antibody mediated rejection is still present after that, he'll have to start again with plasmapheresis, iVIG and chemo.
We don't know if we'll be able to go on our trip at this point (we're supposed to leave on the 22nd) - it depends on how things go and what the doctors advise.
Not what we were hoping for at all and of course we're pretty bummed.
We'd appreciate your prayers,
Elise
He'll be in the hospital getting IV steroids for 3 days. Then they'll do a biopsy to see if that has helped either type of rejection. If the antibody mediated rejection is still present after that, he'll have to start again with plasmapheresis, iVIG and chemo.
We don't know if we'll be able to go on our trip at this point (we're supposed to leave on the 22nd) - it depends on how things go and what the doctors advise.
Not what we were hoping for at all and of course we're pretty bummed.
We'd appreciate your prayers,
Elise
Subscribe to:
Posts (Atom)
