We continue to wait on a new heart for Greg and are getting through
day by day. Being stuck in the hospital is difficult for Greg and
with the indefinite time-line he feels like he's never going to get
out! I'll admit it feels like that to me too.
Greg has not been feeling well over the past few days. He's extremely
fatigued and uncomfortable. Although the doctors adjusted his
medications a bit before the weekend they don't seem to be making a
big difference. He did lose some of the water weight but its already
starting to come back. He was told this morning that even if they
were able to get all of the water off, Greg still wouldn't be able to
leave the hospital. While his heart does OK when he's in bed or
sitting still, even walking slowly taxes it too much. And if they
took him off the extremely high doses of diuretics he can get through
the IV and put him back on oral medications at home, he would just
balloon up.
A highlight of the weekend was that Greg was able to switch to a
bigger hospital room - its the biggest one in the unit he's in! It
has a separate sitting room attached to it so he has more places to
sit and more space to move around in. This has been a huge blessing
and we are really grateful that the nurses were so sweet to switch
him. Since the room is more isolated than the regular rooms, it is
often used post-transplant. Maybe Greg will be back in here with his
new heart! My sister and brother-in-law also came to visit and it was
so nice to have some company - I am very thankful for them!
Here is the updated address with his new room #:
Greg Boros
INOVA Fairfax Hospital
CTU - Room 305
3300 Gallows Road
Falls Church, VA 22042
Thanks for your continued encouragement and prayers!
Love,
Elise
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