Sunday, January 31, 2010

He's Home and Thank You's!!!!

YES... you read it correctly... Greg is home from the hospital as of Friday at about 3PM!!!

This caught us all kind of off guard, but the doctors felt that he had reached a "status quo" with his fluid status and that he could manage his condition from home at this point.  He will be seen in the heart failure/ transplant clinic weekly, with the first visit this Wednesday.  They will do lab work, interrogate his ICD (i.e. download all the information that the device in chest has recorded about arrhythmias and paced rhythms, etc). , and evaluate his general condition.  Additionally, within about three weeks, he will have another cardiac cath to more closely look at his heart function.  He's also going to be having a speciallized stress test while having the pressures measured inside his heart.

At home, he's going to be working on just getting his strength back, exercising as tolerated,  making huge changes in his diet (following a heart healthy, low sodium, fluid restriction diet) and he and Elise will be figuring out a new "normal" for their lives at this point.  As you might imagine, that's a pretty challenging thing to do. At the time of his surgery last week, his heart was functioning SO poorly and was SO overloaded with fluid that the doctors believed he was going to need to have a transplant ASAP.  That's why they wanted to apply for the 1B exception status on the transplant list that I told you about in an earlier email.  At this point, the good news is that he responded REALLY well to the extreme diuretic therapy that he was given in the hospital. As a result, he is listed as a Level 2 on the list, which means that he will definitely  need a transplant in the future, but at this moment, he is stable on oral meds.  Additionally, the changes made to his pacemaker are probably contributing to his improved status. Just for clarity -- he is ON THE LIST - for sure- as of Friday morning.  It was voted unanimously by the review board on Thursday that he will need a heart transplant.

It's a huge blessing that his condition has improved so much and he and Elise are grateful, as we all are. But it is again a huge adjustment, since they had just wrapped their heads around the fact that he would be having a transplant in the near future.  It now is something looming out there in the future, with no real defined timetable on it.  The doctors have explained that the longer Greg has his own heart in his chest, the better it is since the transplant brings with it real risks and we all understand that, but delaying it also brings with it a sense of life being "on hold".  Please pray for them as they work their way through this time of uncertainty.

He and Elise will be returning to their jobs when they can, as dictated by how he is progressing.   They are anxious to return to life and continue their ministry at Mason.

Smitty and the boys arrived on Friday evening and we've had a GREAT time all being together.  As I type this, they are all sitting behind me at the table, playing a boardgame and it's so good to hear them laughing together at their own humor that is not QUITE as funny to anyone else but them :)  Elise got a chance to go and ride her horse this morning and we're so glad that she is getting a little break.  She continues to be an amazing, loving support to Greg.

 We will all be leaving to head back to Pgh this afternoon and resume life.  I'd ask for prayers for all of us as we leave - it will be hard to be apart again.  We are SO grateful to the CRU community here in Fairfax and how they have shown love and support to Greg and Elise.  They will continue to love and care for our kids in our absence and we are so grateful for that.  I'd like to especially thank Randy and Pam Newman for hosting Smitty and me in their home for almost two weeks.  What a huge blessing to not have the additional financial burden of a hotel and even more importantly the love and care they showed to Smitty, Elise and me during some really tough days was an immeasurable blessing. Randy even came to the hospital to watch football with Greg and he enjoyed that SO much!  Also thanks to the Mason CRU staff and students who visited, made banners, sent cards, letters, gifts and left messages on this blog -- you made Greg and Elise feel SO loved!  I've also been amazed at all the support shown to them from the regional CRU community - this organization is truly a living example of the body of Christ caring for each other.  And again, thanks to Tim Henderson (Penn State CRU director) for designing this blog and all the other forms of assistance he has given us.

Finally, thank you to our families, friends and  the HZUMC/ Zelienople community who provided support, meals and financial assistance for our family  -- you are too amazing!!  I know that my family has been eating alot better in my absence than when I'm home!  Sincerely, thank you for helping us get through these two weeks. .. we love and appreciate you so much!

This blog will continue to stay in existence and we will update as new developments/ updates emerge. Please continue to leave your comments/ greetings/ prayers.  It really helps to know how many people care and are praying!

Have a wonderful day!


PS - some of you have asked for their home address, so here it is:

Greg and Elise Boros
11105 Gainsborough Court  Apt. 8
Fairfax, VA  22030


  1. What wonderful news!! We are so glad that Greg is home! :D Take care.

  2. This post gives me cause to rejoice...I think time for Greg and Elise is a good thing right now. Jim and I pray for them daily and for their families...know that you are all loved and cared for by many, many people.

  3. So glad you are both home. Praying you are getting the rest you need and that your sleep is deep, restful and uninterrupted. Know you'll continue to be in our thoughts and prayers. Thanks for all the updates!

    Kellie & Tim

  4. Hi Greg and Elise, My sister Judy just told me about your blog yesterday - I've been trying to read and catch up on all your news. Just know that I'll be keeping you in thoughts and prayers as you travel this journey together. I am reminded daily of the resilience of kids, patients and families as they face medical crises, and what a difference your faith makes. Keep on keepin' on!! Jeanne 'Bean' (Becky's cousin)

  5. Hello neighbor,
    Just wanted to tell you guys that I moved out of my parent's house and currently living on Jermantown Rd. about 1 minute drive to you guys.
    Let me know if you guys need any help.