Tuesday, June 5, 2012


It's so nice to have Greg home!  He isn't feeling very well, but the headaches haven't returned which we are very thankful of!  He is mostly just worn out - sleeping a lot, feeling hot and cold at the same time, dealing with some stomach-related issues, etc.  Thankfully he hasn't had a fever, and all of the symptoms he has now are explained by the medications he is on and the huge ordeal he went through this week!

I had shared some wrong information due to confusion on my part: Greg's 2nd round of Rituxan (the chemo medication) is this Friday at 6am.  Greg's parents will be visiting for a couple days and will be with him for that procedure.  It should take around 6 hours for the infusion to complete.  If the doctors were right and the headaches were a reaction to the IVIG, Greg should have no problems.  However, there is a chance that he was reacting to the Rituxan, and if so it will become really obvious this time around.  Thankfully he's on the steroid and anti-seizure drug to prevent headaches from forming and to decrease any inflammation in his head so even if he does have the headaches they should be able to keep them under control.

The other thing that I misunderstood is that they will send Greg's blood to Johns Hopkins after all 4 of his Rituxan treatments are complete to determine if they have been effective.  So we won't know for another month if this is working.  It would be so much easier to know right away but we'll just have to take this a day at a time and trust that God is in control and that he knows exactly what is going on inside of Greg's body.

We probably won't have much news this week, but I will let you know how his infusion goes on Friday.


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